Epidermolysis Bullosa (EB) is a life-threatening rare genetic disorder that affects the body's largest organ - the skin. Individuals with EB lack critical proteins that bind the skin's two layers together. Without these proteins, the skin tears apart, blisters, and shears off, leading to severe pain, disfigurement, along with internal and external wounds that may never heal. Epidermolysis Bullosa Research Partnership (EBRP) was founded in 2010 to help raise funds and bring global awareness to the disorder. As of June 2021, the projects organized to support EB clinical research trials have raised over $40M. After the success of the Black Circle’s EB Benefit show in April 2020 when the band’s efforts raised $30,000, EBRP co-founders Jill and Eddie Vedder invited the band to be the Pre-Show performers for the Venture Into Cures in November 2020. Jill and Ed were introduced to Black Circle after the band released Dance of the Clairvoyants in January of 2020. Eddie and the members of Pearl Jam have been an influence for Black Circle for decades. Being invited to join this event to help get closer to a cure for EB is a true honor for all the guys.
Co-founders Karrie Keyes and Michelle Sabolchick Pettinato established SoundGirls in 2013. Karrie and Michelle, together with the entire SoundGirls team, support women in
audio by providing a unique spotlight. Their focus is to establish networks that will elevate the women who represent just 5% of all audio engineers. Multiple events over the years have successfully highlighted women’s accomplishments and offered a supportive community to help advance the careers through training and exposure. In July of 2020, as the COVID-19 pandemic brought all concerts to a halt, Black Circle performed a 4 hour livestream to help promote SoundGirls. By bringing awareness to the foundation, Black Circle helped raise $15,000 that was used to develop programs and scholarships offered by SoundGirls.
eb research partnership
CUFA - Central Única das Favelas is a Nonprofit Organization that raises funds and supports for the Mothers in Need of Brazil. The organization provides the day to day necessities that a family needs to survive. Since 2020 and the outbreak of COVID-19, CUFA has also hired healthcare personnel and maintained ambulances to compensate for the absence of public services in the region. This effort helped saved lives during a desperate time in Brazil. Black Circle has partnered with CUFA to help raise funds for the mothers in need for the last two years. The annual Mothers of The Favelas benefit shows, held in May of 2020 and 2021, raised enough month to care for thousands of families in Brazil. The services provided to local families is life changes and Black Circle is committed to continuing our relationship with CUFA for years to come.